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Posted On: 27th Nov 2014

Exposing Hidden Illness

Fixer Jordan Daly
The film explores Jordan's experiences with HME
Jordan working on her Fixers campaign

Countering the false assumption that young people are immune to serious illnesses, Jordan Daly is highlighting how ailments can occur at any age and may not necessarily be visible to the naked eye.


The 17-year-old from Innerleithen in the Scottish Borders has hereditary multiple exostoses (HME) a rare condition that causes non-cancerous tumours to grow on her skeleton.


'These severe illnesses are expected more in the elderly,' explains Jordan.


'The problem is that others don't think about these things occurring in young people and teenagers.


'I can't do certain things, like sitting on the floor.


'I also can't play sports any more, so it has really had an effect.'


HME can cause difficulties with walking, severe pain and limited joint movement, and nearly all those with the condition are diagnosed before the age of twelve.


Jordan, who endured name-calling in school, hopes to create greater understanding, so others with hidden illnesses don’t have to go through similar negative experiences.


'A lot of the time when I was younger I used to get bullied,' she describes.


'It definitely makes school more difficult.


'I don't want people in my situation to feel like they are too different and I want to make sure that they know that they aren’t alone.'


With the help of Fixers, Jordan has created a short film that shows how her youth has been affected by her diagnosis and mobility issues.


Watch her Fixers film 'Living with HME' at the top of this page.


Aiming to make a change from the ground up, Jordan aims to educate the younger generation about HME in the hope that they will take that knowledge and apply it in adult life.


'I'm targeting 5 to 9-year-olds and I want them to accept that people are all different, but those differences shouldn’t be a reason for others to reject them,' she explains.


'If they learn this at a younger age, hopefully it'll carry on into later years and they'll teach their parents as well.


'I'm just looking forward to seeing the film out there.'


To view Jordan's personal blog, click here.


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Watch Jordan talk about her campaign on ITV News. Click here!

Author: Cara Laithwaite


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