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Posted On: 14th Jan 2014

Cystic Fibrosis Care

Fixer Leah Forde
Jake Morrow in the documentary
Fixer Sam speaks with hospital staff in the film

A Fixer from Middlesex, who has cystic fibrosis, is helping other young people with the condition cope with changes to their care.

Twenty-year-old Leah Forde, who lives near Wembley, has worked on a documentary to reassure teenage patients as they transfer from child to adult health services.


The change is designed to prepare them for adult life with the illness, helping them to take responsibility for their own medication.


Leah hopes her Fixers film will make that prospect less daunting.


‘I wanted to do this Fix to help young people moving from child to adult wards,’ she says.


‘I was given a DVD when it was my time to transition and it scared me. I wanted to make a film that was more fun to watch.’


Fixers Jake Morrow (16) and Sam Richardson (17) also have cystic fibrosis - a genetic condition which affects the lungs and digestive system.


They feature in Leah’s documentary to explain their experiences of the transfer to adult services. 


Health professionals at the Royal Brompton Hospital and Leah’s mum, Nicola, are also interviewed in the film to offer their perspectives.


‘I’m so happy with my film now it’s finished. It’s fresh, upbeat and interesting to watch,’ adds Leah.


‘I am very proud of the film and can’t wait for the young adults to watch it and to get feedback from them.’


Leah hopes her documentary will be displayed on the hospital website and offered to young people about to make the transition from receiving care as a child to receiving care as an adult. 


‘I hope it puts young people and their families at ease,’ says Leah.


‘I want it to change people’s views on transitioning. I don’t want them to be frightened.’


You can watch Leah’s film ‘Cystic Fibrosis’ at the top of this page.

Author: Emily Tolloczko


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