I was diagnosed with sickle cell disease when I was three years old and it’s had a huge impact on my life.
I’ve been in and out of hospital over those 21 years and suffered extreme pain at times. One of the worst things about SCD is how unpredictable it can be.
One minute you’ll be fine and then the next in excruciating pain.
But because the disease isn’t something you can see, I’ve found that people can be less sympathetic.
I’m therefore working with Fixers to raise awareness of the genetic blood disorder, so those with the condition feel less isolated and those without will have a better understanding of the disease.
Ade Adebisi, Rugby League Player
Ade supports my Fixers project and provided an interview for my broadcast story.
Marilyn Burton, Specialist Haemoglobinopathy Nurse Counsellor
Marilyn supports my Fix and also was interviewed for my broadcast piece.
I was delighted to meet Stretford and Urmston MP, Kate Green to discuss my Fixers project about sickle cell disease.
She was very supportive of my Fix and insisted she would do her best to raise as much awareness among other MPs in Greater Manchester as well as bringing the subject up in Parliament.
Fixer Sanah (R) with Kate Green MP
I've also had support from the Sickle Cell Society who were impressed with my project. They've asked me if I'd like to be involved in some of the work they'll be doing for World Sickle Cell Day in June and I'm definitely up for getting involved!
Feedback from other people who have seen my campaign can be read below.