I was diagnosed with a complex genetic disorder called Ehlers-Danlos Syndrome (EDS) when I was 12.
It means my joints are very painful and dislocate all the time. I take very strong painkillers every day and have to do lots of physiotherapy to stay on top of it.
On bad days I am in such agony that I can’t walk the ten steps between my bed and the bathroom.
To the outside world, however, I look like every other healthy teenager.
It means people sometimes tell me off for using a priority seat on a bus or stare when I walk out of a disabled toilet.
So I have made a leaflet with Fixers to educate people about ‘invisible’ illnesses and to promote understanding.
Kayleigh Clinton helped me with my Fix.
Mary-Anne White and Lucy Wills
Shak & Natasha