I was diagnosed with a complex genetic disorder called Ehlers-Danlos Syndrome (EDS) when I was 12.
It means my joints are very painful and dislocate all the time. I take very strong painkillers every day and have to do lots of physiotherapy to stay on top of it.
On bad days I am in such agony that I can’t walk the ten steps between my bed and the bathroom.
To the outside world, however, I look like every other healthy teenager.
It means people sometimes tell me off for using a priority seat on a bus or stare when I walk out of a disabled toilet.
So I have made a leaflet with Fixers to educate people about ‘invisible’ illnesses and to promote understanding.
Kayleigh Clinton helped me with my Fix.
Tilly and Bella
Me and my friends want young people to know that calories aren't the enemy!