I was diagnosed with a connective tissue disorder called Ehlers-Danlos Syndrome (EDS) in February 2016.
It is a rare genetic condition that has resulted in me becoming a full-time wheelchair user for the last two years.
It also causes me to experience many debilitating symptoms including constant pain, chronic fatigue, gastric issues and mental health struggles.
My joints are much more flexible than they should be, which means I can’t lift anything heavier than a pint of milk.
It is frustrating that many people seem not to realise that young people can suffer from long-lasting illnesses too.
So I teamed up with Fixers to make a film to make this point and to highlight how my particular condition affects my life on a day-to-day basis.
Mary-Anne White and Lucy Wills
Tilly and Bella