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Nicole

Nicole

Name: Nicole Martin
Age: 17
Year of the Fix: 2014
Location: Winchelsea Beach, East Sussex
Campaign: To raise awareness of neurofibromatosis

I experience chronic pain, chronic sickness and mobility problems caused by the genetic condition, neurofibromatosis.

It causes tumours to grow along my nerves and while many people don’t actually see my symptoms, I can find it hard just to get up and down from a chair and I often feel so sick I can’t eat.

With Fixers, I want to raise awareness of the condition, which some people struggle to understand.

I also want to show others with neurofibromatosis that it doesn’t mean you have to give up on your dreams.

I enjoy judo and was selected to represent Great Britain at the Special Olympics European Summer Games.

I want to help others realise that they too should never give up on their ambitions.

Here is a list of Fixers helping me with my Fix:

 

Miles Taken Thomas Gordon Molly Martin
Joseph Elliott Dak Jordan Matthew Aitken
Makhos Malinga Verity Andrews Jack Oversurg
Aaron Hazelwood Ryan McTear Lydia Gilbert
Sam Brown Harry Fuller Mollie Derhun
Oliver Lawrence Nadia Winn Lukarsz Zemanek
Luke Curteis Robin Brereton

Megan-Cherise Kerr

Brady Lillington    

Professor Gareth Evans, University of Manchester
Gareth Evans, who’s Professor of Medical Genetics, supports my Fix. He agreed to be interviewed about neurofibromatosis and appears in my broadcast piece.


Bexhill College
The team at Bexhill College, where I study, support my project. A group of students from the college took part in a question and answer session with me to appear in my broadcast piece. Matthew French and Hannah Barnes, who work at the college, have been particularly helpful.

 

Thanks to Joe Elliot, judo player, for agreeing to be filmed to appear in my broadcast piece.

August 2014

I am delighted to have won the Outstanding Young Person of the Month Award, sponsored by the Hastings Observer Series and Sussex Coast College.

Each month, the award is presented to someone aged 18 and under who has excelled in some way, or has performed an important role on a voluntary basis in their own home or the wider community.

 

As part of my prize, I have received £100. I am donating half of my prize money to Fixers and the other half to Charity for Kids.

 

July 2014
On Wednesday 9th July I travelled to London to take my campaign to the House of Lords.  There I met with Lord Hunt and asked him for help to raise awareness, funding and support for people with neurofibromatosis.  He agreed to call for a debate and ask several questions in the House of Lords.

 

Fixer Nicole Martin takes her campaign to the House of Lords

 

April 2014

I met with Lord Bassam of Brighton who was impressed with my campaign. He wants to raise the issue that health professionals need to better understand neurofibromatosis.

 

I also have the backing of my local MP Sarah Owen who is supporting me with my parachute jump this year and spreading my Fixers campaign on Twitter.

 

Since my story was featured on ITV I've received some great feedback. You can read some of these comments below.

 

Carole: 'What a girl! And what a devoted and supportive family she has too. We'll be watching in France.'

 

Megan: 'I watched the film tonight and it was fantastic. Thank you so much for everything. I loved helping with the filming it was a great experience!'

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Fixers is a project of the Public Service Broadcasting Trust, funded by the National Lottery through the Big Lottery Fund, and featured on ITV.

Charity No 298643    Company No 2194957