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Leanne Hardy

Leanne Hardy

Name: Leanne Hardy
Age: 17
Year of the Fix: 2019
Location: Ashford, Kent
Campaign: To raise awareness of invisible illnesses

I was diagnosed with a complex genetic disorder called Ehlers-Danlos Syndrome (EDS) when I was 12.

 

It means my joints are very painful and dislocate all the time.  I take very strong painkillers every day and have to do lots of physiotherapy to stay on top of it.

 

On bad days I am in such agony that I can’t walk the ten steps between my bed and the bathroom.

 

To the outside world, however, I look like every other healthy teenager.

 

It means people sometimes tell me off for using a priority seat on a bus or stare when I walk out of a disabled toilet.

 

So I have made a leaflet with Fixers to educate people about ‘invisible’ illnesses and to promote understanding.

 

Kayleigh Clinton helped me with my Fix.

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Fixers is a project of the Public Service Broadcasting Trust, funded by the National Lottery through the Big Lottery Fund, and featured on ITV.

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