Our daughter was born prematurely at 27 weeks and was in intensive care for much of her first year.
We spent time in four different units and while fantastic medical staff helped our baby to survive, it was still a very distressing time.
I want to offer insight into what it’s like to have a child in intensive care and the impact this has on a family.
Living in hospital accommodation, being away from your other children and trying to understand complex medical jargon, can all be very challenging.
With Fixers, I’ve helped create a film to share my experiences.
I want to show neonatal and paediatric intensive care staff how overwhelming it can be for families to spend time in hospital with a sick child. I also want to encourage them to avoid using language that mums and dads might not understand.
While the work that these doctors and nurses do is incredible, I hope my campaign can help improve what is undoubtedly a very difficult time for families.
*NOTE: This project, supported by the Patient Experience Team at NHS England, has trialled working with Fixers over the age of 25.